Tuesday, May 3, 2011

Theft by Lewy Body

Our friend Joyce rang and told me of her visit to see John, her husband, in care. He was as usual unaware of her visit and after some 20 minutes she went to leave when he called her back.

She wrote this of her sad visit.

Painful Memories..

Is there an end to the sadness of heartache

When all around are reminders of happier days.

The love of music that takes you to a special place

Alone, and wishing it wasn’t always this way.

He sits in his chair, unable to walk and barely talk.

A beautiful man who gave his all to life and family

Most times now too difficult to break into his world

As his tired body drifts into untroubled dreams.

We watch and wait for signs of recognition

Willing his face to light up for just a second

Validating that his life with us can still be remembered,

Those eyes that once spoke volumes, now lifeless.

Just as it seems he is trapped in a dark passage

He sometimes comes back to life, as we know it.

Uttering aloud words that are very clear, to remind us

He still has thoughts and feelings of bygone days.

Today was a sad day, with words now etched upon my soul.

“Why wont you stay – this has to change,”

“All I want to do is teach and talk my head off,

But no one can understand me”

“Where are my family?” he said.

And who could possibly have believed

These memories were still within his mind.

I cannot think of a worse imprisonment.

Joy Rowe

30th April, 2011


Over the years John has been in care, I have visited him and often not really had a glimmer of recognition of my presence. John was an academic at a local university and a good friend. Lewy Body Disease stole his character and personality.


Today, I and a friend, went to visit Bronwyn Owen who taught us in the 1940s. She recently celebrated her 102nd birthday and whilst she was chatty, we doubt she really knew who we were. When we visited her on her 100th birthday she recalled both our families and remembered all the names.

2 comments:

Anonymous said...

Kev, a poem straight from the heart, beautifully expressed. We all feel deeply for both Joy and John. Had always said he would rather have the pain and sickness of cancer than to have what John has. five years locked up with people you don't know..Surely when you have lost your mind and you can't cope with everyday skills you should be able to say good bye to this world,we are interfering with life when we give people drugs to keep going, so why can't we decide when to leave, Marg

Anonymous said...

Gee, Miss Owen is 102. Amazing that she's survived so long after the passive smoking from old man Hollingsworth's Capstans at Bicton when I was there in about 1951.